Super Merrick the Mobile, Merrick the Mighty, Magnificent Merrick)
....I'll keep working on it!
speaking of Merrick, last week was spent in full hospice mode, so I feel like last week was a bit of a dry spell in our bloggy world.
Dry......a complete contradiction to the weather we were facing.
Well in the midst of that dry spell many of you were wondering how our dear Merrick is faring.
Here you can see for yourself. For the first time in over 2 weeks Merrick is moving where he wants to, WHEN he wants to. It's amazing. Here he lies perched halfway on the huge Poof chair we are borrowing (which I would have a hard time parting with if it didn't take up my ENTIRE living room ;)
Previously, he had been confined to that couch or his wheelchair for much of the day.
As I mentioned in the last post, something got into him this past Friday and he decided to take matters into his own hands. So now instead of having feeling like I'm caring for a large newborn, I feel like we've graduated to the toddler stage overnight! Although Merrick CAN move.....the question remains,
"How safe IS he when he moves?"
So I follow him around when he's pushing his walker.
And the poor boy will stop and sit on the walker's seat from time to time. But he's SITTING! A miracle in itself! AND we haven't touched a bedpan all weekend! That deserves a Halleluia in and of itself!!
So we are all relieved by this turn of events!much solid weight hanging off your leg!
Also, I mentioned before that Pathology reported the growth as a benign tumor. Which means that further treatment will not be necessary! Praise God our boy's discomfort will soon come to an end!
(On a logical note, we're thankful for that....seeing as how we'll be paying off his anesthesia alone .......for years to come! But that's a story for another day.)
And the Dr actually booked our next appointment for February 1st! That's only one week away!
He did not specify whether the cast will come off at that time, but I'm sure there will be a new xray taken to show the healing process.
So we're plugging along. This week we will dive back into school full time. It's been awhile! What with the Christmas break, all of Merrick's Dr. appointments, and then the post-op. Ian has carried on with his schoolwork, but not in the same organized fashion as before. So tomorrow we learn with full on circle time, reading, writing and arithmetic, and lots of games sprinkled in there! I'm also going ot introduce a typing program for Ian to begin his journey with the keyboard. Ian meet asdfghjkl; asdfghkl; meet Ian :D
So thank you for your continued support and encouragement.
The most humbling part about all of this is to know that the plan is greater than ourselves. That there is so much going on in this situation, that we may not even catch on until much later in life. But how exciting, that life continues!
I know I can speak for all of us when I say that our spirits are high!
We are eager and ready to greet tomorrow!
Press on dear friends, there is nothing we can't get through with the grace of God and by the support of each other!
Call me emo, but I mean it ;)
For the promises of God are Yes and Amen.
Can you see the double rainbow?
That's two promises in one ;)